NH Council for Youths with Chronic Conditions Meeting
DATE: 9/17/26 TIME: 5:30
Meeting Location and Zoom information:
Meeting Purpose/Goals:
Parent Members (up to 13 members)
☒ Kristin Bonny, Chair ☐ Thaia Dorow ☐ Lauren Sirignano ☐ Regan Lamphier ☐ Karin Mortimer
NH State Advisors/Representatives/Appointed Positions:
☐ DHHS: Dee Dunn ☐NHID: Jennifer Smith ☐ DOE: TBD ☐ NH Senate: TBD ☐ NH House: Katelyn Kuttab
☐ Community-Based Agency: Hannah Maynard Yung
Professional/Community Organizations (up to 6 members)
☒ Sylvia Pelletier, NH Family Voices ☐ Emily Lajoie, NH School Nurse
Meeting Facilitator and Note taker: Aaron Russell, Council Admin.
| Agenda | |||||
|
Time |
Topic |
Category |
Leader(s) |
Key Takeaways &
Action Items |
|
| 5:30 | General Updates | Information | Aaron, Kristin | -Kristin will reach out to members with an update.
-Aaron discussed updates to the Annual Report draft to provide a draft to the council during the October meeting. Kristin will also be working on this.
-Aaron discussed the google sheet to reach out to organizations. Kristin discussed who she has reached out previously and will help contact organizations and former members with connections.
|
|
| 5:45 | Training | Information | All | -Jenn (NHFV staff) will have the flyer ready with potential to be out next week.
-Discussed the changes to stipend policy. Sylvia spoke with Michelle at PIC to offer a family support stipend for the training. The training is 5 hours total, with the potential of a flat fee.
-Hannah can send out flyers and NHFV staff will also continue to share. |
|
| 6 | Bylaw Changes | Discussion | All | -The idea of holding a bylaws specific meeting for members to review proposed changes by staff.
-Council and staff will continue to work on bylaws and data needs
-We will discuss the idea of having an event in June. |
|
Next Meeting: Full Council Meeting October 15