Minutes - NHCYCC

NH Council for Youths with Chronic Conditions Meeting

DATE: July 17, 2025 TIME: 5:30-7:00

Meeting Location and Zoom information:

Meeting ID: 865 0275 7984. Password required

Meeting Purpose/Goals:

Leadership

☒ Karen Livernois, Chair, Parent Appt by Governor ☒ Kristin Bonny, Vice Chair ☒ Tim Guidish, Treasurer

☒ Karin Mortimer, Secretary ☐ Jennifer Burbank, Parent ☐ Michele Caswell, Parent ☐ Thaia Dorow, Parent

☒ Regan Lamphier, Parent ☐ Nicole Parker, Parent ☒ Lauren Sirignano, Parent

NH State Advisors/Representatives/Appointed Positions:

☒ Deirdre Dunn, BFCS/DHHS ☐ Community-Based Agency Director: TBD ☐Education Department: TBD

☒ Jennifer Smith, Insurance Department ☐ Representative Katelyn Kuttab, NH House of Representatives Senator

☐ Becky Whitley, NH Senate

Professional/Community Organizations (up to 6 members)

☐ Dr. Harohalli Shashidhar, Elliot Hospital Pediatric GI Specialist, Medical Consultant ☐ Emily Lajoie, NH School Nurse Association

☐ Amy Mahoney, Epilepsy Foundation of New England ☒ Sylvia Pelletier, NH Family Voices

Meeting Facilitator: Karen Livernois, Chair Note taker: Karin Mortimer, Secretary

Agenda
Time	Topic	Category	Leader(s)	Key Takeaways & Action Items
5:30	Welcome & Introductions	Information	All	Welcomed members to the first meeting with our new fiscal agent, NHFV/PIC
	Secretary’s Report Past Meeting Minutes	Information Discussion	Karin Mortimer	Meeting minutes from February were distributed for review and approval at November meeting along with these minutes.
	Finance Report	Discussion	Tim Guidish	Discussion about changes with the new fiscal agent. Noted some changes to categories and line items, changes are driven by the new guidelines with NHFV/PIC and won’t impact the work that the council does.
	Membership	Discussion	Karen Livernois	Discussed open spots we are looking to fill. NHCYCC will follow up with good connections made with the Nurses Association.
	Chair Update	Discussion	Karen Livernois	NHCYCC new fiscal agent is NHFV/PIC. While there may be procedural changes, NHFV and PIC fully support the work of the council and leadership at NHFV and PIC have strong ties to NHCYCC. A job description for an administrative assistant position to be posted and filled. This position will replace the former Director position. Work is underway to update NHCYCC bylaws to ensure they’re up to date and speak to the work that we do. Discussion about moving meetings to in person meetings vs ZOOM. Some members of the council have multiple children at home with chronic health conditions which may make in person meetings difficult. More discussion to come. NHCYCC will plan to meet in the fall in person at the PIC offices in Concord.
	Agency Reports DHHS (Dee Dunn) Insurance Department	Information	Dee Dunn	Dee discussed the Title V block grand and the priorities of DHHS in this year’s grant request. Request is due July 28^th and will be discussed in the fall. Briefly discussed the Social Services block grant and the public hearing scheduled August 1^st at the Brown Building. Dee discussed the focus DHHS is building leadership in young adults within our community.
	Other Business	Information	All	Karen and Kristin discussed the need to focus on building the committees -specifically the member relations committee to help grow the council. Kristin delivered this year’s NHCYCC Child Champion aware off to Cole. Karen shared an email from a 2023 NHCYCC Child Champion aware winner, Calvin, who shared that his recognition in 2023 was a driving force in continuing his advocacy work. Karen suggested members review the current bylaws to prepare for upcoming discussions on updating them to more accurately reflect NHCYCC and the work we do.
7:00	Adjourn		All	November meeting to be scheduled in person at the PIC office in Concord.

Next Meeting: TBD