NH Council for Youths with Chronic Conditions Meeting
DATE: January 21, 2026 TIME: 5:30-7:00
Meeting Location and Zoom information:
https://us02web.zoom.us/j/82857055250?pwd=e2HUlcYEj1oQABVtbtQQlGS0YC87io.1#success
Meeting Purpose/Goals: Annual Meeting/Updates
Leadership
☒ Karen Livernois, Chair, Parent Appt by Governor ☒ Kristin Bonny, Vice Chair ☐ Tim Guidish, Treasurer
☐ Karin Mortimer, Secretary ☐ Jennifer Burbank, Parent ☒ Michele Caswell, Parent ☒ Thaia Dorow, Parent
☒ Regan Lamphier, Parent ☐ Nicole Parker, Parent ☒ Lauren Sirignano, Parent
NH State Advisors/Representatives/Appointed Positions:
☒ Deirdre Dunn, BFCS/DHHS ☐ Community-Based Agency Director: TBD ☐Education Department: TBD
☐ Jennifer Smith, Insurance Department ☐ Representative Katelyn Kuttab, NH House of Representatives Senator
☐ Becky Whitley, NH Senate
Professional/Community Organizations (up to 6 members)
☐ Dr. Harohalli Shashidhar, Elliot Hospital Pediatric GI Specialist, Medical Consultant ☐ Emily Lajoie, NH School Nurse Association
☐ Amy Mahoney, Epilepsy Foundation of New England ☒ Sylvia Pelletier, NH Family Voices
Meeting Facilitator: Karen Livernois, Chair Note taker: Aaron Russell, Admin.
| Agenda | |||||
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Time |
Topic |
Category |
Leader(s) |
Key Takeaways &
Action Items |
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| 5:30 | Welcome & Introductions
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Discussion | Karen Livernois | -Introducing Aaron Russell as administrative support | |
| 5:45 | Budget Report | Discussion | Sylvia Pelletier | How to read report:
-total allocation by line item -assign funds into the line item -second column total to date
What it covers: -went through salaries section for staff -office supplies -travel expenses -google workspace/zoom/website costs (small portion goes to NHFV for zoom) -member stipends -facilitation costs for strategic planning
Question: Is this an acceptable format to present for everyone’s understanding?
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| 6:00 | Chair Report/Membership | Discussion | Karen Livernois | -we are in a transition period
-went over membership terms, a few peoples terms are up this year (3-4)
Proposal: Should we leave things as they are until strategic planning?
-Kristin (Vice Chair) as Chair, Karen (Chair) stay on in an advisory capacity to help things along
Note: we cannot vote on things via email -cannot have more than 3 members leave at a time and we have 4 whose terms are up
Action Items: – Working on recruiting members, specifically diversifying our members (location in state, age, children), to align more with original intent to give departments an idea of needs – Need to do a close look at needs of the council, representation and outreach
-going to be moving to in-person meetings using PIC office as a hybrid accessible location -still need members from senate, ed., gov. appointee
We will discuss these more during strategic planning in April.
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| 6:15 | Right-to-Know Overview
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Presentation/Discussion | Aaron Russell | Aaron gave a presentation on Right to Know and then we answered any questions and noted important upcoming legislation affecting Right to Know.
-don’t need to disclose any personal information, especially regarding children (Karen asked because of the information on our applications)
Does the public need access to remote meetings? Yes. All meetings? Also, yes.
-Dee will get more clarification on some of the questions—sent a few links
Action Items: -All questions send to Aaron -Make a running list of legislation -Issue more guidance during strategic planning in April -Do we need registration for strategic planning? Is this open to the public? Need clarification.
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| 6:30 | Strategic Planning
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Information | Sylvia Pelletier | Saturday April 4th, 9 AM-2 PM (not sure yet on time?)
-this is a good time for members to be more acquainted with history -also, a good time to invite potential members to participate -need as many people as possible to come -Kristin and sylvia discussed what went on in past strategic planning meetings -during meeting we will think of activities that best fit with the founding council intention -planning is beneficial to communicate with departments about family needs
Action item: -finding/figuring out support for facilitation of the meeting, vote on costs -let aaron know about participation -lets get engagement! -working on outreach |
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| 6:45 | Agency Report | Information | Dee Dunn | Dees Notes:
· Title V Action Plan updates related to the CSHCN Domain o Priority to Strengthen the system of care for CSHCN prioritizing quality of life, optimal well being and flourishing for CSHCN and their families. § Activities include mapping care coordination efforts to identify existing pathways, gaps, duplication and opportunities for integration. § Promote Person-Centered planning across programs and services. § Support cross-sector learning community for care coordinators across agencies and systems to improve service navigation and family experience. o Recommendations from reviewers to include public input and youth engagement. o Suggestions from this group? · The department of health and human services, department of education, and the insurance department shall provide to the council available data, consistent with confidentiality requirements, relevant to the needs of this population. o Are there any data points you would like from us, this year? o Erika D is available to present if appropriate. · Preparing SSBG post expenditure report due March 30. Primarily expenses and numbers served. Application is due August 30. It was available for public comment in August; we received none.
-Dee answered questions that members had
Action Items: -Start thinking of data and information we want from the department -start getting more public input
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| 6:55 | Voting | Karen Livernois | Voting | We have a quorum!
Motion to approve July meeting minutes (Kristin, seconded by Regan) – All present voted in the affirmative
Motion to approve funding for April 4th strategic planning (Kristin, seconded by Regan) – All present voted in the affirmative
Motion to move forward with Vice Chair Kristin becoming Chair (Regan, seconded by Thaia) – All present voted in the affirmative
Table: February meeting
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| 7:00 | Adjourn | Karen Livernois | Discussion | Closing notes:
– In-person meetings at PIC office – Need to look at regions represented (Action Item) – Aaron’s hours: Monday and Thursday 9-3, remote Wednesday
Motion to adjourn (Regan, seconded by Kristin) – All preset voted in the affirmative |
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Next Meeting: TBD