Meeting Minutes

Time: 5:30 - 7:00 pm

Date: September 18, 2024

Location: Zoom

Council for Youths with Chronic Conditions
September 18, 2024
Zoom meeting

Meeting called to order at 5:30pm.
Meeting adjourned 7:00pm

 

Attendance

Leah Stagnone, Karen Livernois, Tim Guidish, Dee Dunn, Betty Gay, Regan Lamphier, Kristin Bonny, Karin Mortimer, Lauren Sirignano,Jennifer Burbank, Ansley Peacock, Jennifer Smith

 

  • Secretary’s Report (Karin Mortimer)
    • March meeting minutes
      • Kristin Bonny made a motion to approve March minutes, seconded Tim Guidish.  Motion passed 5-0-0
    • May meetings  minutes
      • will be voted on in our next meeting

  • Fiscal Agent change update
    • NHCYCC will have a new fiscal agent effective 7/2025
    • Council looking into what funds can be transferred and what must be spent down
    • Council discussed various options for new agent
    • Dee provided input as to the selection process and asked for the council’s input

  • Membership (Karen Livernois)
    • The group reviewed a membership application for Elizabeth Greeno and a potential youth member, Bayleigh Clock.

  • Treasurer Update ( Tim Guidish)
    • Reviewed Treasurer’s report and budget
    • Under budget for the fiscal year
    • Tim looking for details on spending from fiscsal agent to sure up budget numbers for next year. 
  • Council Director Update
    • Reflections on Annual Event 
      • Great event, reviewed lessons learned and suggestions for next year.
    • Discussed upcoming Learning Journey event 9/27 and 9/28
      •  Encourage family participation on the 28th 
    • Gubernatorial Town Hall on Disability has been canceled due to scheduling conflicts.
    • Leah and Karen Livernois presented to a group of care coordinators.  Leah and Karin Mortimer presented to Elliot Pediatrics Department.  Both presentations were well received by both groups and raised quite a few questions around our work with policy change and legislation relating to chronic health conditions.
    • Leah to represent NHCYCC at Rare New England Conference in October.  S

 

  • Agency Report (Dee Dunn)
    • Area agency contracts underway
      • Changes to contracts by December
      • Changes to contracts require 30-60 days if we want to add anything to the contract

 

  • Celebrating Council Members
    • Congratulations to Audrey Gerkin Scholarship recipient Jen Burbank for starting NH Leadership Series 
    • Karin Mortimer to start ME-NH LEND series
    • Karin’s son, Tyler, was featured on the IOD blog written by Kathy Bates
    • Tyler also signed a 2-year contract with Team Impact and the Saint Anselm Hawks football team.  Team Impact is an organization that connects children with disabilities and chronic health conditions with college athletic programs.

*2024 Council Meeting Dates: Wednesday, November 20th at 5:30 PM

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