NH Council for Youths with Chronic Conditions Meeting
DATE: May 13th, 2026 TIME: 5:30-7
Meeting Location: Zoom
Family Members
☐ Karen Livernois, Parent Appt by Governor ☒ Kristin Bonny, Chair
☐ Karin Mortimer ☐ Jennifer Burbank, Parent ☐ Michele Caswell, Parent ☐ Thaia Dorow, Parent
☒ Regan Lamphier, Parent ☐ Nicole Parker, Parent ☒ Lauren Sirignano, Parent
NH State Advisors/Representatives/Appointed Positions:
☒ Deirdre Dunn, BFCS/DHHS ☐ Community-Based Agency Director: TBD ☐Education Department: TBD
☐ Insurance Department: TBD ☐ Katelyn Kuttab, NH House of Representatives
☐ NH Senate: TBD
Professional/Community Organizations (up to 6 members)
☐ Emily Lajoie, NH School Nurse Association ☒ Sylvia Pelletier, NH Family Voices
Meeting Facilitator: Kristin Bonny, Chair Note taker: Aaron Russell, Admin. Support
|
Time |
Topic |
Category |
Leader(s) |
Key Takeaways &
Action Items |
| 5:30 |
Updates/Introductions |
Information | Kristin, Dee | -No quorum to approve last meeting minutes, today’s meeting minutes and previous meeting minutes will be approved at strategic planning if quorum present
-Kathy Gray will be filling in for Dee at strategic planning, Dee will be out, Kathy has extensive experience with councils such as ICC and working with families and professionals, policy effectiveness, services, birth to 3 -BCFS hired Hannah Maynard Yung for HCC Program Manager Position. Dee shared that she will be working with the council and will attend strategic planning |
| 6 | Budget Report | Information | Sylvia, Kristin | -Fiscal agent detailed expenditures
-Went over the trouble with First Tracks regarding website maintenance, lacking a maintenance agreement we are still waiting on a detailed explanation of what charges are for -Aaron and Sylvia have been communicating with the owner and billing head to get the proper documentation -Aaron and NHFV/PIC graphics / webmaster downloaded the website information as a precaution if we need to rebuild the website, we will be discussing the website as part of strategic planning -Family members discussed the importance of the website for outreach |
| 6:30 | Strategic Planning and Funding | Discussion | All | -The priority of strategic planning is to think about the activities under 126-J and the infrastructure/events that we can use our funds for
-We have until June 30th to spend funds. Full amount will not be expended this year. -Family members discussed the historical fiscal costs, and Dee went over the funding changes and reporting requirements -Kristin will be sending out an invite for strategic planning |
| 6:45 | Agency Report
|
Information | Dee | -HCC Program Manager position filled
-Title V block grant season, budget biennium -Discussed the changes to the council and how it is important to have the agency be more connected to support the council’s work -Discussed membership outreach for the council and ensuring we have representation from regional councils |
| 7 | Closing and Needs Assessment Questions | Information | Kristin, Sylvia, Aaron | -Strategic Planning 9-2:30 @PIC office in Concord
-Terry Ohlson-Martin will be providing history -Going over the founding legislation and brainstorming to meet the objectives of it -Discussed the support for the planning from NHFV staff -Asked family members the needs assessment questions and discussed family supports
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