NH Council for Youths with Chronic Conditions Meeting
DATE: 3/4/26 TIME: 5 PM-6 PM
Meeting Location and Zoom information:
Meeting Purpose/Goals: Annual Meeting/Updates
Parent Members
☒ Karen Livernois, Immediate Past Chair, Parent Appt by Governor ☒ Kristin Bonny, Chair
☐ Karin Mortimer, Secretary ☐ Jennifer Burbank, Parent ☐ Michele Caswell, Parent ☒ Thaia Dorow, Parent
☐ Regan Lamphier, Parent ☐ Nicole Parker, Parent ☐ Lauren Sirignano, Parent
NH State Advisors/Representatives/Appointed Positions:
☐ Deirdre Dunn, BFCS/DHHS
☐ Representative Katelyn Kuttab, NH House of Representatives Senator
Professional/Community Organizations (up to 6 members)
☐ Emily Lajoie, NH School Nurse Association
☒ Sylvia Pelletier, NH Family Voices
Meeting Facilitator: All Note taker: Aaron Russell
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Time |
Topic |
Category |
Leader(s) |
Key Takeaways &
Action Items |
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| Strategic planning date | Discussion | – Dee cannot attend the April date, waiting on dates that she is available
– What dates work? Weekend in May or June? – Regular council meeting in June? – Karen isn’t available for all of May – June 6th as the tentative date for strategic planning – Discussed if it’s better to have planning take place over the course of two days for less hours or one Saturday all day
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| Strategic planning location | Discussion | – Karen suggested we use the PIC space, can use the conference/meeting space and also make use of the hallway
– Should we include a remote option? We can have that option available but in-person participation is strongly suggested and preferred but if you need to do it remotely, we can accommodate – Propose days to members and send out a poll to see which day or days are preferred
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| Strategic planning date and future priorities regarding planning | Discussion | – We need to find a day that Dee can come or at least for a part of strategic planning
– Council act as an initial focus group for the needs assessment – Schedule meeting that Dee can attend and also have members participate in coming up with questions and adding input about services and care coordination – Have an exec. Meeting before an April council meeting , also maybe have one for planning in May |
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| To do and going forward
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Decision | – Send out a poll to see which normal meeting days work
– Send out a poll for strategic planning – Agenda, prepare members for focus group participation – Can also do brainstorming for outreach for membership, sending the materials we have to members like the one pager, maybe some programs messaging
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Next Meeting: TBD