NH Council for Youths with Chronic Conditions Meeting
DATE: December 3, 2025 TIME: 5:30-6:30
Meeting Location and Zoom information:
Meeting ID: 843 5464 8504
Meeting Purpose/Goals:
Leadership
☒ Karen Livernois, Chair, Parent Appt by Governor ☒ Kristin Bonny, Vice Chair ☒ Tim Guidish, Treasurer
☐ Karin Mortimer, Secretary ☐ Jennifer Burbank, Parent ☐ Michele Caswell, Parent ☐ Thaia Dorow, Parent
☐ Regan Lamphier, Parent ☐ Nicole Parker, Parent ☐ Lauren Sirignano, Parent
NH State Advisors/Representatives/Appointed Positions:
☐ Deirdre Dunn, BFCS/DHHS ☐ Community-Based Agency Director: TBD ☐Education Department: TBD
☐ Josh Hilliard, Insurance Department ☐ Representative Katelyn Kuttab, NH House of Representatives Senator
☐ Becky Whitley, NH Senate
Professional/Community Organizations (up to 6 members)
☐ Dr. Harohalli Shashidhar, Elliot Hospital Pediatric GI Specialist, Medical Consultant ☐ Emily Lajoie, NH School Nurse Association
☐ Amy Mahoney, Epilepsy Foundation of New England ☒ Sylvia Pelletier, NH Family Voices
Meeting Facilitator: Note taker: Aaron Russell, administrator
| Agenda | |||||
|
Time |
Topic |
Category |
Leader(s) |
Key Takeaways &
Action Items |
|
| 5:30 | Introductions
|
Information | All | -introductions for new admin | |
| Member updates | Information
Discussion |
Karen, Sylvia | -State Rep. appointed to council is Katelyn Kuttab
-need updated member roster with their information -need to put together updated orientation materials for members
Action Item: Karen will drop off materials at the PIC office on Friday 12/5 – Find a way to also put together the orientation materials electronically |
||
| Annual Report | Information | Karen | -Karen needs to submit the annual report that was due on Dec. 1, will work with Kristin to submit that ASAP | ||
| Strategic Meeting in April, January Meeting, and Right To Know
|
Information | Karen, Sylvia | Action Item: review by-laws after the strategic meeting
– Subcommittee to make suggestions
-Right to know training during January meeting, Sylvia will most likely lead -Connect with Michelle to determine how to communicate the right to know materials -We need further clarification on right to know in regard to hybrid options for attending meetings (i.e. how much detail do members need to disclose, ask rep. on council about where the legislation is at) |
||
| January Meeting
|
Information | All | -Need to send out minutes 10 days to 2 weeks
-Aaron will send out July meeting minutes and the January meeting date, agenda, introduction email as well
|
||
| April Strategic Meeting | Information | All
|
-Aaron needs to look for a location on a Saturday
-Review by-laws -Connect with other advisory councils on their governing documents |
||
| Miscellaneous Council Needs, Orientation Information, Outreach Materials | Information | All | -Orientation documents are mostly updated
-Website inaccuracies—there will be changes coming -Discussed what should be included in orientation materials regarding the founding legislation -Tabeling materials should also include youth voice and lived experience -We have a QR code that we can use with resources
Action Item: Karen will get Aaron the social media passwords, we still need representation from dept. of ed., senate, insurance, and governor appointee (may need to reach out to get governors appointee, send out conflict of interest forms and process disbursements |
||
| 6:45 | Adjourn | ||||