Council for Youths with Chronic Conditions
March 15 2023
Zoom meeting 5:30-7:30pm
AGENDA
- Introductions
- Stephanie Patrick – Director of the NH Disability Rights Center (DRC)Discussion and input from CYCC for the DRC’s 5 year strategic plan
- Secretary’s Report (Kristin Bonny)
- January 18, 2023, Meeting Minutes
- Treasurer’s Report (Tim Guidish)
- Macro Promos, Are you a difference maker?
- Leadership Series sponsorships
- Funds for this year’s projects
- Greenlight invoice
- Membership (Karen Livernois)
- House rep, Dept of Ed, and Community Organizer
- New application; Ellen Bailey, Independent Pedi In Home Nurse
- Presentation Updates
- Leadership series 3/10 presentation update (Karen L and Karen M)
- Seacoast Human Resource Assoc (SHRA) 3/14 (Audrey and Karen L)
- Agency Report (Dee Dunn)
- Insurance Department Report (Josh Hillman)
- Policy Focus
- HB467 – Playground bill
- HB540 – Education Tiered (Deodonne)
- Other potential bills: HB342 Lead testing in children, Multiple bills around PFAS
- Emergency Preparedness (Attended prep exercise facilitated by FEMA for NH) last planning meeting 3/16/23
- Upcoming 2023 Spending Goals
- Champion Awards/mid-July Chronic Health Awareness Month-Proclamation
- PhotoVoice Exhibit at Family Support Conference
- Scholarships for kids/Scholarships for Camps
Events:
* March-May Community Partner for SHRA – Portsmouth Country Club
* Health Educator Gail Gettens on Lead Poisoning at May 17th meeting, Check out her
work including a children’s book.
* July TBD Champion Awards/Chronic Health Awareness Month
* August 5-6 Family Support Conference (Tabling & Possible PhotoVoice Gallery) – Manchester
*2023 Council Meeting Dates: May 17, Sept 20, and Nov 15