Council for Youths with Chronic Conditions
ANNUAL MEETING
January 18 2022
Zoom meeting 5:30-7:30pm
AGENDA
- Introductions
- Amy Mahoney – Executive Director for Epilepsy Foundation of New England
- Amy Mahoney – Executive Director for Epilepsy Foundation of New England
- Secretary’s Report (Kristin Bonny)
- November 16, Meeting Minutes
- Treasurer’s Report (Tim Guidish)
- Updating line items
- Funds for this year’s projects
- Membership (Karen Livernois)
- Annual Meeting Election for Executive members
- New Member Application – Amy Mahoney – vote at end of meeting
- Agency Report (Dee Dunn)
- Insurance Department Report (Josh Hillman)
- Policy Focus
- Formula/Nutrition bill
- Emergency Preparedness (Attended prep exercise facilitated by FEMA for NH)
- Private Duty Nursing (Drafting presentation outline to submit for Disability Policy Seminar in Washington DC with MA and PA leaders)
- Upcoming 2023 Spending Goals
- Champion Awards/mid-July Chronic Health Awareness Month-Proclamation
- PhotoVoice Exhibits
- Scholarships for kids/Scholarships for Camps
- DHHS Planning Grant for FMAP of ACE Kids Act?
- Supplies: Swag, Easels, Signage
- Other ideas for directly assisting Families?
Events: February 3 12-1:30pm : State House Meet and Greet with NH Disability
Organizations/Tabling opportunity – Volunteers needed!
*2023 Council Meeting Dates: Jan 18, March 15, May 17, Sept 20, and Nov 15