CYCC Council Director Job Posting

A group of adults laughing and reaching arms out to spin a web, while Spiderman sits posed in front of them
CYCC Members Photo by Christine McCarville

Come work for a fantastic group of people that make up the Council for Youths with Chronic Conditions! The council is searching for a Council Director to assist leading the work for families caring for children with special health care needs in New Hampshire.

DESCRIPTION: The Council Director is the public face of the Council for Youth with Chronic Conditions (the Council).  The Council Director is required to attend meetings, trainings, and events both in-person and remote. The Council Director is an employee of Community Partners and is responsible for providing strategic leadership for the Council including in the areas of public policy, communications, and administrative coordination. The Council Director reports to and operates as directed by the Council’s Executive Committee.


The Council Director does not directly supervise any paid staff at this time.


 Public Policy

  • Responsible for advancing a policy agenda that furthers Council mission and increases public awareness of Council including:
    • Tracking, monitoring, and analyzing proposed legislation and policy efforts and informing and working with Council members and other stakeholders on strategic response.
    • Identifying and facilitating connections and collaborations between Council and public and private stakeholders including state officials, agencies, non-profits, community programs etc…
    • Representing Council on various boards, coalitions, and community efforts.


  • Responsible for internal and external communications:
    • Developing resources and other materials (e.g. Annual Report)
    • Developing, managing, and maintaining website, social media, and google share drive.
    • Coordinating outreach efforts to promote Council agenda including press releases, conferences, comment letters etc…
    • Performing tasks, projects, and other duties as assigned.
  • Responsible for Event Planning for the council.
    • Planning and execution of a minimum of one event per year for the council and New Hampshire families.
    • Marketing materials to advertise for the event/s.

Administrative Coordination

  • Supporting Council to foster an active and engaged membership and providing leadership through which Council may achieve its mission and goals.
  • In partnership with the Council Chair, preparing and facilitating, a minimum of four yearly Council meetings:
    • Consulting with Council leadership on the preparation of meeting agendas, supportive materials, and facilitation of meetings.
    • Ensuring accurate and timely dissemination of meeting materials and minutes.
    • Tracking and developing Council membership including all required membership seats.
  • Working with Council to maintain and further the financial health of Council.
    • Working with Council Treasurer to develop annual budget and track accounts (including parent stipends, accounts payable/receivable).
    • Maintaining fiscal records of all Council activities.
    • Investigating and pursuing possible funding opportunities, such as grants and fundraisers.
  • Working with Council to gather relevant data to inform Council efforts.
  • Developing, coordinating, and tracking outcomes of Council initiatives.
  • Maintaining historical records of Council activities.


  • Bachelor’s degree required, Master’s degree preferred. In lieu of an advanced degree, 4+ years of relevant experience will be considered.
  • Experience and understanding of New Hampshire’s systems of care and legislative process required.
  • Excellent oral and written communication skills required. Demonstrated ability to write grants is preferred.
  • Demonstrated ability to work in a highly organized manner and to take initiative is required.
  • Able to maintain confidentiality at all times.
  • Able to utilize technology provided to perform requirements of the job.
  • Access to reliable transportation.


  • Salary commensurate with education and experience.
  • Job Type: Part-time
  • # of Hours: 20-30 hours/week variable
  • Job Location: Remote. Frequent in-person meetings required throughout the state.


Share This Article