Links

Over the years, CYCC has partnered with countless organizations in addressing the medical, social, and educational impacts of chronic health conditions on children and their families. Many of these organizations are listed here.

Breathe New Hampshire
Breathe New Hampshire is the state’s oldest nonprofit voluntary health agency. It was established in 1916, when a group of concerned New Hampshire residents organized to form the New Hampshire Tuberculosis Association. Today, as Breathe New Hampshire, the organization’s mission encompasses the challenges associated with: asthma management; keeping both indoor and outdoor air clean; nicotine addiction; chronic obstructive pulmonary disease; and other matters affecting healthy breathing.
Contact: Mary Ellen Hettinger Director of Public Relations and Communications, mhettinger@breathenh.org

Respiratory Therapy Overview – Learn how to be a become a respiratory therapist.

Mesothelioma 

Occupational Therapy Fundamentals -Learn how to become an occupational therapist.

Financial Aid Basics– Career resource center/financial aid for online colleges

Child Cancer Lifeline of New Hampshire
The Childhood Cancer Lifeline was founded in 1995 by a group of parents whose children had childhood cancer. Since its inception, the Childhood Cancer Lifeline has been a strictly volunteer organization dedicated to addressing the practical and emotional needs of New Hampshire families dealing with pediatric cancer. Today, its volunteers have expanded to include family members, friends, and other caring individuals.
Contact: info@childhoodcancerlifeline.org, (603) 645-1489

New Hampshire Family Voices
Caring for children with special needs can be exhausting and complex. Parents and caregivers often struggle to find the resources and services their child needs. New Hampshire Family Voices’ goal is to help these families. New Hampshire Family Voices operates a family to family health and education center that features one-to-one phone assistance, educational materials, and a lending library.
Contact: nhfv@yahoo.com, (603) 271-4525

New Hampshire Partners in Health
The New Hampshire Partners in Health Program helps families of children with a chronic health condition advocate, access resources, navigate systems, and build capacity to manage the chronic health condition of their child.
Contact: Heidi Petsold, (603) 271-4508

Arthritis Foundation, New Hampshire chapter
The Arthritis Foundation is the only national, not-for-profit organization that supports the more than 100 types of arthritis and related conditions. Founded in 1948, the Arthritis Foundation has multiple service points located throughout the country. The foundation helps people take control of arthritis by: providing public health education; pursuing public policy and legislation; and conducting evidence-based programs to improve the quality of life for those living with arthritis.
Contact: Margaret Duffy

New Hampshire Healthy School Environments
The New Hampshire Healthy School Environments program helps school districts improve their indoor and outdoor environments, as well as the health of their students and staff. The program works with school districts and provides free assessment, training, technical assistance, and mentoring to address environmental and asthma management needs identified by schools.

Granite State FitKids
Granite State FitKids is a multi-week, interactive health awareness program. At the core of the program are lessons called Body Workshops, which discuss the body systems, the effects of tobacco, and the benefits of good nutrition and regular physical activity. Lessons are approximately 45 to 60 minutes in length and are designed to complement existing health education curriculum. The Body Workshops—conducted by Charles Cappetta, MD, FAAP, and his team of facilitators—are held at elementary schools throughout New Hampshire and Massachusetts.
Contact: Dr. Chuck Cappetta, (603) 577-4400

The Parent Information Center of New Hampshire
The mission of the Parent Information Center is to guide and encourage families in supporting the unique learning potential of their children, including children with disabilities. The Parent Information Center and its various grant programs address a variety of key issues in order to help parents support their children’s success in school and in life.
Contact: Michelle Lewis, Executive Director

NH Department of Education- Learner Support
New Hampshire aims to improve educational outcomes for all children, while meeting the unique needs of children and youth with disabilities.
Contact: Heather Gage   (603) 271-5992

New Hampshire Pediatric Society
The New Hampshire Pediatric Society is the state chapter of the American Academy of Pediatrics.
Contact: Catrina Watson, executive director, (603) 226-2432

Easter Seals New Hampshire
For more than 26 years, the National Health Council ranked Easter Seals first among its members for the percentage of program dollars spent on direct client services. Also, every penny raised stays in New Hampshire to benefit Granite State residents. Business New Hampshire magazine recently named Easter Seals NH the 2010 Non-Profit Business of the Decade. Easter Seals N.H. includes New Hampshire, Vermont, Maine, Rhode Island, New York, Coastal Fairfield County, and the Harbor Schools programs in Massachusetts. It is recognized as the most progressive and diverse Easter Seals nationally.
Contact: (603) 623-8863

New Hampshire Association for the Blind
The New Hampshire Association for the Blind was founded in 1912 by Emma Coolidge Weston of Hancock, N.H. For more than 98 years the mission has been to “advance the independence of persons who are blind and visually impaired.” The Association offers a complete range of specialized, professional vision rehabilitation services to help people with low vision or no vision live full, independent lives.
Contact: services@sightcenter.org, (603) 224-4039

New England Society of Allergy
The New England Society of Allergy is a non-profit organization of board certified allergists and immunologists in the six New England states and upstate New York. The New England Society of Allergy was founded in 1956 for the purpose of: fostering the study of the science and the practice of allergy; fostering high standards of the practice of allergy; teaching members by presenting educational programs; and promoting the health and welfare of allergy patients through education of its members.
Contact: (603) 436-7897

NORD National Organization of Rare Diseases  A large database of organizations and resources for individuals and families regarding rare diseases.

Contact: Krista Gilbert, NH Chapter

Cystic Fibrosis Foundation, Northern New England Foundation
The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis, and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 care centers, 95 adult care programs and 50 affiliate programs, and more than 75 chapters and branch offices nationwide.
Contact: Lisa O’Connor Executive Director, (800) 757-0203

Muscular Dystrophy Association, New Hampshire Chapter
The Muscular Dystrophy Association is the nonprofit health agency dedicated to curing muscular dystrophy, ALS, and other related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. MDA was created in 1950 by a group of adults with muscular dystrophy, parents of children with muscular dystrophy and a physician-scientist studying the disorder. Since its earliest days, it has been energized by its number-one volunteer and national chairman, entertainer Jerry Lewis.
Contact: manchestera@mdausa.org, (603) 471-2722

National Multiple Sclerosis Society, Northeast Chapter
The Greater New England Chapter of the National Multiple Sclerosis Society serves 19,000 individuals and families affected by multiple sclerosis in Maine, Massachusetts, New Hampshire, and Vermont.
Contact: CommunicationsGNE@nmss.org, (603) 344-4867

National Kidney Foundation Serving New England
The National Kidney Foundation, Inc., a major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
Contact: nkfne@kidney.org, (508) 907-6030

Northeast Deaf & Hard of Hearing Services
Northeast Deaf & Hard of Hearing Services is New Hampshire’s first effort to provide centralized services for New Hampshire residents who are deaf or hard of hearing, late deafened, and deaf/blind.
Contact: info@ndhhs.org, (603) 224-1850

New Hampshire School Nurses Association
The New Hampshire School Nurses Association promotes quality school health services by registered professional school nurses to ensure that each child can reach his or her full educational potential.
Contact: Pam Murphy, president, (603) 224-1850

American Cancer Society
The American Cancer Society is a nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem. It has 12 chartered divisions, more than 900 local offices nationwide, and a presence in more than 5,100 communities.
Contact: (603) 472-8899

American Diabetes Association
The American Diabetes Association’s mission is to prevent and cure diabetes, and to improve the lives of all people affected by diabetes.
Contact: (603) 627-9579

American Heart Association
The American Heart Association is a national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.
Contact: (603) 518-1551

Children’s Neuroblastoma Cancer Foundation
The Children’s Neuroblastoma Cancer Foundation (CNCF) is the premier source for neuroblastoma information and resources.
Contact: info@cncfhope.org, (866) 671-2623