The name of this board shall be called the Council for Youths with Chronic Conditions and Their Families.
THE COUNCIL FOR YOUTHS WITH CHRONIC CONDITIONS IS ESTABLISHED TO ADVOCATE AND COLLABORATION WITH STATE AND LOCAL AGENCIES TO ASSESS AND IMPROVE THE CAPACITIES OF COMMUNITIES TO EFFECTIVELY RESPOND TO NEEDS OF CHILDREN AND ADOLESCENTS WITH CHRONIC HEALTH CONDITIONS AND TO PROVIDE MEANINGFUL SUPPORT TO THEM AND THEIR FAMILIES.
1. Promote the organized assessment of the needs of children and adolescents with chronic illness and their families.
2. Serve in an advisory capacity to the Department of Health and Human Services, Department of Education, and Insurance Department for policy and program development.
3. Collaborate with the Department of Health and Human Services, the Department of Education and their public and other public and private organizations statewide to enhance community-based family supports that meet the unique needs of children and adolescents with chronic health conditions and their families.
4. Increase awareness in the public and private sector of the medical, social and educational issues that impact children with chronic health conditions and their families.
5. Provide consultation and testimony to the legislature on related issues.
6. The Council shall report annually on or before November 1 to the Governor and the General Court regarding the progress being made to provide services and support to children and adolescents with chronic health conditions and their families in regular educational and medical environments allowing them to remain in or near their own homes and communities.
1. The number of Council members shall not exceed 27 with up to 13 members who are parents or guardians (or have been) of a child or adolescent with a chronic health condition, and on parent or guardian of a child or adolescents with a chronic health condition, appointed by the Governor.
2. The following New Hampshire agencies and departments shall be represented on the council
a. One representative of the Department of Health and Human Services, appointed by the commissioner.
b. One representative of the Department of Education, appointed by the commissioner.
c. One representative of the Insurance Department, appointed by the commissioner.
3. The following community representatives shall be appointed to the Council through the nominating committee process.
a. A director from a community –based agency which has been charged by the Council with providing support and services to children and adolescents to children and adolescents with chronic health conditions and their families.
b. Up to 6 representatives of professional and community organizations, which shall represent a cross-section of disciplines and constituencies such as, but not limited to, physicians, nurses, and educators, appointed by the council in accordance with its bylaws.
4. The Council shall also include representatives from the legislature:
a. One Senator appointed by the President of the Senate
b. One House member appointed by the Speaker of the House
5. Terms of office:
a. Terms of office shall be for three years (including those appointed by state departments), except for the representatives from the legislature who shall serve their terms of office. One third of the total membership shall expire annually at the annual meeting, which shall be held during the month of January.
b. To maintain the staggering of the memberships, the expiration date of each membership term shall be fixed, even when vacant.
c. Members of the Council resigning during their term of office will have their unexpired term filled by a person brought forth by the nominating committee and vote of the executive board, notice of such election having been given.
d. Council membership shall be appointed for no more than two full consecutive three-year terms, but may be re-appointed after an absence of one term. A Council member whose term of office is expiring may continue beyond the end of the term until re-appointed or until a successor is nominated.
1. Schedule/notice of meetings
a. The Council shall meet as often as necessary but hold a minimum of four (4) meetings annually.
b. There shall be an annual meeting at which Council officers shall be elected and the annual budget presented.
c. The Chairpersons shall present a calendar of regularly scheduled meetings for the following year at the annual meeting.
d. A special meeting of the council may be called at any time by the chairperson on written petition of four (4) members.
a. A quorum fro voting shall consist of a simple majority of the total number of members currently serving on the Council. Voting by proxy shall not be permitted.
b. Council meetings shall be open to the public, except when the Council votes to go into a non-public session consistent with New Hampshire RSA 91-A.
a. Members shall notify the Chairperson/Vice Chairperson or designee beforehand when they are unable to attend any regular or special meeting.
b. Council members absent from three consecutive regular Council meetings, unless previously excused by the Chairperson, may be deemed to have resigned from the Council.
4. Cancellation Policy
a. Any scheduled (regular or special) meeting of the Council may be cancelled for unforeseen circumstances (weather, etc.) by collaboration between the Executive Director and Chairperson or Vice Chair.
1. The officers of the Council shall include a Chairperson, Vice-Chairperson(s), Secretary and Treasurer drawn from and elected by the membership of the Council. The officers shall serve for one year who the possibility of re-election subject to continued eligibility.
a. The chairperson shall:
i. Chair meetings of the Council;
ii. Supervise the conduct of the Council business and activities,
iii. Set Council meeting agendas in consultation with committee chairpersons and other members,
iv. Serve as ex-officio member of all committees voting only in the case of a tie,
v. Represent the Council to the public and to elected and appointed officials,
vi. Appoint a Nominating Committee Annually.
b. The Vice-Chairperson shall:
i. Assume the responsibilities of the Chairperson in his or her absence,
ii. Chair the executive committee,
iii. Assist and/or represent the Chairperson, as the Chairperson deems necessary with oversight of committees and activities of the Council.
c. The Secretary shall:
i. Sign minutes and assist in maintaining the files of the Council,
ii. Assure proper notification of meetings and dissemination of minutes and other information.
d. The Treasurer shall:
i. Present a yearly budget to the Council for consideration at the annual meeting,
ii. Cause all debts and obligations of the Council to be paid,
iii. Ensure that an accurate record is kept of all receipts and disbursements and that these records shall be open for inspection by Council members and auditors at all times,
iv. Review and update the Council on a regular basis regarding financial issues of the Council.
The Council may establish such standing committees, ad hoc, committees or task forces as it deems appropriate to help carry out its mission. The members of these committees shall serve for the term established by the Council when establishing the committees.
1. Executive Committee
a. The executive committee shall be a standing committee of the Council and be comprised of the officers and the chairpersons of standing committees.
b. The Vice Chairperson of the Council shall chair the Executive Committee, voting only in the case of a tie.
c. The function of the Executive Committee is to provide the leadership of the council. The Committee shall provide guidance to the Council Chairperson and shall serve as the steering committee for the Council by acting on Council matters which require attention between Council meetings. It shall report to the Council on such matters at the next scheduled meeting of the Council, and obtain ratification where necessary. The Council may at the discretion of the majority, delegate general or specific ad hoc responsibilities to the Executive Committee to include staffing oversight.
2. Nominating Committee
a. The Council Chair person, with the approval of the members, shall/may appoint a Nominating Committee annually to present a slate of officers to the Council.
b. The Nominating Committee shall present a slate of officers to the Council annually as well as nominations for additional members of the Council.
3. Additional Ad Hoc Committees can be formed annually under the Council’s Policies and Procedures.
CONFLICT OF INTEREST
1. Duty to Disclose Each Council member, prior to taking a position on the Council, and all current members shall submit in writing to the Chairperson of the Council shall complete the state’s standard Financial Disclosure Form (RSA 15-A) a list of all business or other organization which he or she is an officer, director, trustee, member, owner (either as a sole proprietor or partners), shareholder, employee or agent, with which the Council has, or might reasonably in the future enter into, a relationship or a transaction in which the Council member would have conflicting interests. The Chairperson of the Council shall become familiar with the statements of all members in order to guide his conduct should a conflict arise.
2. Voting At such time as any matter comes before ether Council in such a way as to give rise to a conflict of interest, the affected member shall make known the potential conflict, whether disclosed by his written statement or not, and after answering any questions that might be asked him/her, shall withdraw from the meetings for so long as the matter shall continue under discussion. Should the matter be brought to a vote, the affected member shall not vote. The Council will comply with all the requirements of New Hampshire Law where conflicts of interest are involved.
3. Statutory Requirements The New Hampshire statutory requirements dealing with pecuniary benefits (RSA 7;19, II and 292:6-a) are hereby incorporated in full into, and made an integral part of, this conflict of intersect policy; and a copy of the relevant New Hampshire statutes are attached hereto so that every Council member is aware of the statutory requirements. There requirements include, but are not limited to, (i) absolute trustee; and (ii) prohibition of any sale or leases (for a term greater than five years) or conveyance of real estate from an officer, director, or trustee without the prior approval of the probate court. These requirements extend to both direct and indirect financial interest, as defined by the attached statutes.
The Council may solicit, expend, and disperse funds from the state and federal government, as well as private grants and funds. It may also enter into contracts as necessary to carry out its purpose.
1. A Council member may propose amendments to these Bylaws at any time, by circulating, in writing, to the entire Council membership, the proposed amendments two (2) weeks prior to a meeting at which the amendments are to be considered and voted upon.
2. A two-thirds majority of the full Council membership shall be required to amend the bylaws.
The Council shall not discriminate against any person on the basis of age, ethnic, or national origin, handicap, race, religion, sex or sexual orientation.
LIMITATION OF LIABILITY
The Council members and officers shall serve without compensation and, pursuant to Section 508:16 of New Hampshire Revised Statutes Annotated, shall not be liable for bodily injury, personal injury and property damage if the claim for such damages arose from an act committed in good faith and without willful or wanton negligence in the course of an activity carried out to accomplish the purposed o the Council.
ENACTED: DECEMBER 16, 1997
REVISED: September 18, 2001
REVISED: SEPTEMBER 25, 2002
REVISED: OCTOBER 20, 2003
REVISED: MAY 24, 2014